Sunday, January 9, 2011

2011 Naples, FL


January 7, 2011
I have spent the last week in Florida with my Mom & Grandpa. It has been great fun. My Grandpa (on my Mom’s side), my Uncle Steve (on my Dad’s side, I actually have two uncles named Steve), and my second cousin Nancy are really the only family I see much of. I enjoy all the time I get to spend with the people I am related to. It is fun to hear all of the stories about everyone and play cards.

You can’t be a true Keefer without playing cards. When we play we are out for blood. At about age 6 you were on your own when in came to cards, even Grandma wouldn’t be ‘nice’ to her own grandchildren in a card game.

I can still hear her comments today, “Aren’t you going to be nice to your Grandma?” Then she would smile at me all sweet like. Ha. “Na-ty. Just na-ty.” She of course would have to be winning to keep playing.

Then, there is Grandpa…”Are you sure you want to play that?!” He chuckles as he steals what you would think is a good play. He of course somehow always has a better hand then anyone else. How that works I still to this day have not figured out.

Other then lots of playing cards, Mom and I carted Grandpa all over the place shopping. He was a fantastic sport about it. He even modeled some flamboyant women’s hats, that tittered on top of his xxl head (he & I wear the same size hats). I have some amazing pictures of this, which I am still deciding if I am going to post or not. Time will tell.

We ate lunch with Grandpa every day at his retirement center. It was fun to meet his friends and the waiters. The staff at ‘the center’ are really good. They all know my Gpa by name and bring him iced tea even before he asks for it. They know his wit and joke with him all the time. Much to my Mom’s relief they know he is diabetic and watch his dessert intake. Which is good…because he tries to cheat all the time. I would too if I couldn’t eat sugar!

His friends are some of the most interesting people I have met. I should start off by saying that the average age at ‘the center’ is 96. Which is unbelievable to me. I met a man they called ‘Little John’ (who isn’t even 5ft, tiny little thing), who is 96 and sharper then a tack. Sweetest man. He goes for a walk everyday. My Mom told him a joke at breakfast, he came all the way across the dinning room at lunch when he saw her to tell her a joke. Aw! He had to get close to her to whisper it in her ear because it was slightly dirty. Oh, also Little John is from the Bronx. He would want me to tell you that in his day when you went out you were to wear a hat, a fedora.

BeBe. There just aren’t enough words to describe Bebe. I think she might be my favorite this trip. She is a firecracker. You can hear her laughter walking down the hall to the dining room. She calls my Mom ‘honey.’ When we went to the Salvation Army on Wednesday we took BeBe with us. Oh she was a hoot. On the way there she was telling me all about this shell shop she used to own and how she still owns this storage locker that is full of shells. She has her opinions about everything, especially the food at ‘the center,’ and she will tell you about it. But, she will have you rolling in the aisles as she does so. BeBe is also 96. You wouldn’t know it by looking at her or talking to her though.

I want to know the secret that many of these people have who live with my Grandpa. He is considered a ‘youngin’ there. There is a woman there who is 99 ½. When my Grandpa pointed her out, I never would have thought she was going to be 100 in a couple months. She was up and about, still very active. Going out for dinner every week and doing her own errands. I guess I have no idea what age really brings.

As far as my Pots goes for this week, I have been doing particularly well. Even with all the travel, which surprises me. I have been consuming more caffeine then usual, but I have been about ten times more active then usual too.

I have been on a much more regular sleep schedule, which I think makes a big difference. I should be doing this while I am at home too, but it is just more difficult. I have been sleeping on an air mattress, so I am looking forward to getting back to the tempurpedic (mattress & pillow…I would live in bed if I didn’t have to get up and get some exercise) that I LOVE so much.

I have not been drinking as much water as I should be. I am looking forward to getting home and getting back to my regular h20 intake.

I have been getting much more exercise then I do on a normal basis. I have been doing really well with it actually. I am surprised at that. Other then being sore and having a pressure headache, I am doing pretty well. My Mom and I walked on the beach (which is a major workout for normal people) for and hour and a half and I felt fine.

I think that the weather has had a lot to do with feeling good. There is nothing like the power of sunlight and a good temperature. The beach was beautiful and that just put me in a great mood. I love the tropical setting. I would live in it full time if I could, it makes me feel so great.

So, when I get home (wheels down in about 30 min, probably) I would like to:
·      Keep up being more active on a daily basis with a yoga routine that I found before I left.
·      Get my water routine back in check.
·      Start getting to bed and waking up more on a general routine (baby steps).
·      Keep up with my meds (I have been doing really well lately, probably also a reason I am feeling more in check).

Well, this will all have to be done in steps…as I am home for a couple days and then I leave for Ohio for 2 ½ to see my best friend Val. Which might disrupt this whole process. I will just have to get back on the routine again when I get back.

Kicks & Giggles.
K
<3


Wednesday, December 29, 2010

Cruel & Unusual Punishment

**mIgRaInEs**


    I have suffered from migraines for a couple years now. While we are unsure as to wether the onslaught of my migraines is directly related to my Pots Syndrome, it is a side effect of the disease over all. It just happens that I began suffering from migraines a couple years before we think I became sick.
    A side effect of the disease that I do suffer from is that I am now allergic to all OTCs (over the counter medications, specifically pain medications). Before I became sick, I could take Advil, Aleeve, Tylenol, etc. Now, I am unable to takes these meds without having an allergic reaction. This makes dealing with my migraines hard, and very painful. On the positive side, my pain tolerance has increased.
    I have learned some holistic treatments to help with the pain of migraines. Smelling cayenne pepper helps relieve the pressure in the head, and helps ease the pain with some migraines. Others can be soothed by eating Chinese hot and sour soup. If these remedies don't work, drinking tea, coffee, or anything with caffeine may help to release the pressure. If none of those options work, there are two options left, wrapping your head in an ice pack and lying still, or facial/head massage on pressure points (there is also a pressure point between your thumb and pointer finger that will help relieve a headache when massaged).


    Sometimes the pain is just so bad, there is nothing to do but crawl into bed in a dark room and hope for sleep. At these times, wetting wash cloths and freezing them and then laying them over your eyes can help ease the pain in your head. Getting your neck and shoulders to relax is also another good way to help soothe a head that feels like it is going to explode. Heat packs are very helpful with this. I use cloth bags with rice in them that I heat up in the microwave.
    As always, drink lots and lots of water whenever you are in so much pain. It is important to take good care of the rest of your body while your head is in anguish. 
    I have been up all night with a horrendous migraine. I have taken my prescription meds, and they didn't do anything but take the edge off of the pain for a little bit. I have tried everything in my 'bag of tricks.' Now, I guess it is just a waiting game for it to go away. Woohoo.
Foot massage...anyone?? hehe.

Cupcakes & Hot Cocoa.
K
<3



Monday, December 27, 2010

[[[Pots Treatment...Water]]]

Water is YUMMY!!


As part of my treatment for Pots Syndrome, I am supposed to drink as much liquid, specifically water, as possible (gatorade is extremely good too, as I am on an extremely high salt diet as well...in other words, as much salt as I can eat in one day...salt on everything). This can be daunting some days, I just don't want to drink anything, or I want other liquids that just simply aren't as good for me. So I have taken a couple measures to make my water diet a little more bearable. 


I use my Starbucks cold drink tumbler everyday for water, I LOVE it. It goes everywhere with me. It is perfect for liquids and ice. Especially for me since I keep it by my bed at night and it goes in the car with me and into stores and such. I also knock it over and it doesn't leak. I don't have to open and close it all of the time like I do with my nalgene (which I still love and use frequently...great for traveling, specifically at the airport and camping). 


I have always been somewhat of a 'water snob.' But, I am even more-so now that I am drinking it constantly. I refuse to drink DeKalb water or Sycamore water unless it is filtered (yes, I really can tell a difference)...at least I can admit it right?? Also, I really can tell a difference between bottle water brands. I know it's weird. I prefer Ice Mountain. I LOVE ice water.


Having to drink it all the time I have experimented with different flavors in water...lemon and lime are both good, lime is the best of the two in my opinion. 


This summer Caribou had this fantastic tea, white tea with lime and mint...it was fantastic. I was so sad to see it go at the end of the 'seasonal' period. So I did experimenting and was able to make it at home, not as perfect as Caribou, but it was still good. Then, I tried it without the tea and came up with the best 'water recipe' that I have tried so far.

I have been drinking water with mint and lime...it is amazing. Rip some fresh mint leaves and sprinkle them over some ice cubes, squeeze some lime juice over the ice cubes and add water....YUM! Very refreshing and so much better for you then soft drinks and other sugar filled drinks. It will also quench your thirst. Try mint and time with tea and a little bit of sugar for another delicious drink.


Stay Hydrated.
K
<3

Sunday, December 26, 2010

Snow White

Snow White
[Sleeping in a Coma]

These last few days I have felt like Snow White, waiting for my true love's first kiss to come wake me out of my deep catatonic, poison apple induced, coma. It's not as fun, or romantic as is looks in the Disney movies. No blooming foliage, or curious furry friends...just lots of exhaustion and un-fun meds to take. Also, trust me, when sleeping that deep....no girl's make-up looks that perfect, nor does one's hair stay neatly in place. HA. Any girl but a Disney princess would wake up looking like a raccoon with a mess on top of their head, just waiting for a deep condition treatment and some major TLC.


Adorable, I know, but now sure about wanting to wake up next to that in the morning...or anything having to do with love's first kiss.

Sometimes with Pots, I don't have a choice about what I do. The exhaustion takes over and I just have to rest. No matter how much I want to do whatever it is that is going on. 
For example, I love snowboarding. Otto went snowboarding with a couple friends last weekend and I was supposed to go with them. Unfortunately, I was just too tired.
I also LOVE photography, which I haven't been doing any of because I have been too 'busy' spending all of my energy on school. Which, trust me, isn't a lot of energy.
The list just goes on and on...

Sweet Dreams.
K
<3




Monday, December 6, 2010

The Works


      Finals are this week. One of the many problems I am having is that I can barely stay awake long enough to eat, studying is not even on the horizon. Which is not my usual problem (usually I can't sleep at all). Two of the days that I had planned to spend studying and working on a project I have due...were spent in bed, literally unable to stay awake. 
      No matter how hard I tried to force myself out of bed, I couldn't get up. When my body does this, there is nothing I can do about it. Even caffeine can't keep me awake. This happens a couple days a month usually. There is nothing I can do about it, no way to tell when these days are coming.
      I hope my body will gets its priorities in order. I need to be awake for my test tomorrow and my brain needs to be clear so I can think. After all, if I am there for the test, but my brain is foggy (as is known to happen with POTS), I might as well just have skipped the test all together.
      Trying to get through school with this disorder has been an adventure. I have had to accept that I currently do not have the ability to perform at the level that I used to, and take one day at a time. I have be doing better and better as the treatment has continued; but I get frustrated as I just want to be my 'old self.'
      I should probably be studying right now and not taking the time to write this, but I find it easier to take time to sort things out in my head.
      I am ready for Christmas break!! Also, for the week in Florida my Mom & I will be spending in with my Grandpa (as we do every year). Hopefully, the sun and my Grandpa's wit will help me to feel better to face another semester of school.
Sleeping on My Text Books,
K
<3
P.S. Audrey Hepburn is AmAzInG! Especially as Holly Golightly.

"You could always tell what kind of a person a man thinks you are by the earrings he gives you. I must say, the mind reels."
-Holly Golightly

Monday, November 29, 2010

My Special Treat: Salted Caramel Hot Chocolate from Starbucks

salted-caramel-signature-hot-chocolate-7.jpg

      With Pots Syndrome, days can be really hard. Many days I just spend lying around the house. Many days, I don't have enough energy to get out of the house. Luckily, many of my professors so far have been very understanding about my condition and have made special arrangements with me so that I can do a lot of work from home.
      The great thing about staying at home is that I can live in comfy pants and sweatshirts all the time. Which I love.
Energy is extremely precious. The exhaustion daily I feel is unlike what 'normal', healthy people feel. I can't wait to feel better and have energy again. It's something I think about multiple times a day.
      Today, Otto & I went out for a special treat, we had a Starbucks date. <3 I tried the Salted Caramel Hot Chocolate for the first time. I have been wanting to try it since I first heard about it a couple weeks ago. Usually when I go to Starbucks I get coffee for the caffeine. It helps a little with the exhaustion.
      After some research I found a fairly simple recipe that may be similar to the salted caramel hot chocolate.
Alice’s Salted Caramel Hot Chocolate Recipe
saltedcaramelhotchocolate2.jpg

Ingredients:
3 tablespoons Caramel syrup, heated to luke warm  (recipe here)
Hot Chocolate (4 tablespoons of 
ganache plus 6 oz. of milk, heated)
Canned Whipped Cream
Pinch of Medium Coarse Sea Salt
Directions:
Pour 2 Tablespoons of caramel syrup into a mug so the inside of the mug is coated well.  Add hot chocolate and stir everything.  Top off with with cream, drizzle with remaining caramel, and sprinkle with sea salt.  Enjoy!
http://savorysweetlife.com/2009/11/salted-caramel-hot-chocolate-recipe/
(recipe & picture)
Hope you are keeping warm!!! 
xoxo,
K
<3

Wednesday, November 24, 2010

I Went to Mayo Clinic & was Prescribed McDonalds French Fries


True story.
Part of the treatment for Pots Syndrome is a massive intake of salt everyday. Anything I eat, should have salt on it. As much salt as I can handle, is the appropriate measure. 
Basically, I am supposed to ruin all of the food I am eating. Yippee. 
Dr. Fischer told me to order a large McDonald's fry. There is TONS of salt in there!
I am also to be drinking insane amounts of liquid.
I take water with me where ever I go.  

Well, yet again, I have taken my sleep meds, I am exhausted beyond words, and here I am, awake at 5:30 AM. I just wish I could sleep like normal. Boo. Hiss.

Sunrise with Come All Too Soon,
K